Every woman has the right to informed consent

Fighting for justice for women and families suffering the devastating effects of hormone pregnancy tests.
But we can only do it with your support.

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Our Story

In the 1960s and 70s, thousands of women were given the oral hormone pregnancy test Primodos. Today, there is more evidence to suggest this drug caused life changing and devastating congenital abnormalities, stillbirths and miscarriages. The Association for Children Damaged by Hormone Pregnancy Tests (ACDHPT) is campaigning to expose the truth about the failures of both past and present Government Regulatory Agencies and the continuing cover up by the drug company Bayer/Schering. We have had to fight to bring this scandal into the open, to ensure our families are recognised as innocent victims of an unnecessary drug and absolved of any guilt at the tragic results.
It is now time to place the blame where it belongs, with the Regulators and the Manufacturer, to allow our families to finally shed the guilt they have carried for more than 50 years. It is now time for Justice.

Marie Lyon, Chair, ACDHPT.

Breaking News

6 Aug ’20 : Sky Documentaries Premiere  :  the Sky Film, Bitter Pill, will be released on 24th August, on the Sky Documentaries channel at 9.00 p.m.

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How Can You Help?

Sky News Primodos

The ACDHPT works together with our Legal Team PGMBM, to provide research and evidence which will support and strengthen our legal claim. This also involves working closely with MPs in the House of Commons and the House of Lords. Together, we ensure that past regulatory failures are acknowledged, and current regulatory failures exposed, to ensure we move from a protect and deny culture to an open and listening one. Only by listening to patients can we ensure these avoidable harms never happen again. We feel a moral responsibility to hold the Government and Manufacturer to account, to protect future generations from unnecessary and untested drugs.

Membership of the Association is available to anyone who has been affected by a hormone pregnancy tests (HPT), Primodos or Amenerone Forte. Members bring invaluable support as each new member offers an opportunity to increase our MP support and provide additional funding for our research and campaign. The progress we have made to uncover the scandal and launch the IMMDS review would not have been possible without the nominal subscriptions provided by our families and the vital support of MPs.

Finally, we understand that after 50 years, it can be difficult for those affected to acknowledge and discuss many of the personal issues surrounding Primodos. We understand, and ensure complete confidentiality of your support if you wish.

If you have been moved by our campaign but have not been directly affected by a HPT, we still need your help. Please see how you can support us or donate to help fund our fight for justice.

Timeline

1958

Primodos prescribed as a convenient new method of pregnancy testing.

1967

Dr. Isabel Gal produces the first comprehensive study identifying the association between HPTs and congenital abnormalities.

1975

First warning re: HPTs/Primodos from Government Health Regulators.

1977

Second warning started: "The association has been confirmed".

1978

Primodos taken off the market in the UK.

1978

The Association (ACDHPT) was formed and received 800 family members.

2017

Expert Working Group commissioned by the UK Government concluded there was no association.

2020

Baroness Cumberlege was asked to Chair an Independent Medicines and Medical Devices Safety Review, which concluded there was an association between HPTs/Primodos and adverse effects. The Report, published on 8th July 2020, concluded that Primodos should have been removed from the Market in 1967, immediately after the publication of Dr. Gal's Study.

Fight For Justice

We have campaigned for over 40 years in our fight for justice. The Cumberlege Review marks a significant step forward acknowledging the colossal impact of Primodos. We continue the fight to ensure that the NHS, regulators, manufacturer, policy makers and healthcare system admit that mistakes were made and that patients should now be compensated for these failings.

1. Mistakes Acknowledged

The mistakes of the past must be acknowledged by the manufacturer of Primodos – Bayer AG, who now own Schering AG, the original creator of Primodos.

2. Cultural Change

All the recommendations from the Cumberlege Review published in July 2020 to be implemented by the UK Government

3. Financial Redress

To acknowledge and redress the avoidable harms Mothers suffered, from miscarriage, stillbirth and life changing congenital abnormalities. To support Families still caring for their badly damaged children, more than 40 years after taking an unnecessary oral hormone pregnancy test.

Personal Stories

Nicola Jayne Morino 1200x800Personal Stories
July 30, 2020

Jo Moreno

Normal birth. 1 hour delivery. 04/10/70. Extremely poorly, projectile vomitingMajor op 3 wks old to investigate jaundice. Cut open up her middle. No scans in them days.We were told she…
Personal Stories
July 14, 2020

Chris Gooch

When Emma was born in 1971 the consultant who came to visit said she had a heart murmur, possible hip dysplasia and the obvious defect of improperly formed fingers and…
Personal Stories
July 14, 2020

Margaret Roberts

My son Garry was born in 1964. I'd been to see my doctor 9 months earlier and was given 2 tablets, one to be taken in the morning and one…
MORE PERSONAL STORIES

Have you been affected by Primodos?

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Latest News

HERC PrimodosNews Archive
July 21, 2020

Primodos: The first step towards Justice

HERC: In this article, Sharon Hartles reflects upon the significant impacts of avoidable harms that have been perpetuated for decades through a culture of denial and an absence of state…
Primidos-drug-story-with-Ord-familyNews Archive
July 19, 2020

Hannah Bardell seeks justice for Primodos families

DAILY RECORD: SNP politician Hannah Bardell wants the Government to implement the findings of a damning report into health scandals, including the pregnancy test drug. Hannah Bardell said mothers were treated…
baroness-cumberlegeNews Archive
July 14, 2020

Baroness Cumberlege’s Speech

The following is the speech given by Baroness Cumberlege on 8th July 2020. Good morning. The people of Britain have every reason to be proud of their NHS.Its response to…

Frequently Asked Questions

What is Primodos ?

Primodos was a hormone-based pregnancy test drug, given to women from 1958 to 1978, to detect if they were pregnant. Around 1.5 million women in Britain were given Primodos. It consisted of two pills that contained high levels of synthetic progestin and oestrogen hormones. Those hormones would later be used in the morning after pill.

What support is available to me if I have been affected ?

If you or a family member has been affected by Primodos you can join the ACDHPT. As a member of the Association, you will receive regular email updates on our progress and confidential information on proposed actions we are planning, in our ongoing legal battle with the UK Government and Manufacturers. You will also benefit from the considerable support of our All Party Parliamentary Group of MP’s, who have played a vital role in our campaign’s success

What is the ACDHPT ?

The Association for Children Damaged by Hormone Pregnancy Tests is a registered charity in the UK (No. 276658) and has been set up to fight for justice for those affected by Primodos.

Does the ACDHPT include HPTs ?

Yes, our campaign and legal fight includes both Primodos and Amenorone Forte.

How can I help support the ACDHPT ?

Even if you have not been directly affected there are ways which you can help. Follow us on Social Media; Make a donation to help our fight; Contact your MP for their support of the All Party Group which is pushing for change within Parliament and sign the petition for Boris Johnson to implement change!

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